Resources and support

Support throughout your/your child’s CRYSVITA treatment journey

Kyowa Kirin is committed to patients with rare diseases, which is why we created the Kyowa Kirin Cares^TM Patient Support Program—a suite of services designed to help you or your child along the CRYSVITA treatment journey.

Our Nurse Case Managers are experienced professionals who are passionate about supporting you at every step. They can help you:

Learn about CRYSVITA therapy
Understand your insurance coverage
Determine your eligibility for financial assistance
Coordinate the delivery of your CRYSVITA and injection supplies
Schedule your/your child’s CRYSVITA injections

Downloadable resources

CRYSVITA Treatment Guide for Adult Patients

Download Adult
Treatment Guide

CRYSVITA Treatment Guide for Pediatric Patients

Download Pediatric
Treatment Guide

Helpful organizations

The Canadian XLH Network

Visit website

The Canadian XLH Network is a non-profit organization that aims to connect Canadians with XLH and promote XLH awareness in Canada.

Visit website

The XLH Network

Visit website

The XLH Network, a 501(c)(3) non-profit organization, seeks to connect people around the world who are affected by or interested in learning more about XLH. The XLH Network connects affected individuals, families, and medical professionals.

Visit website

Canadian Organization for Rare Disorders (CORD)

Visit website

CORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. The site also includes guidance about building an advocacy group or becoming a rare disease advocate.

Visit website

Le Regroupement québécois des maladies orphelines (RQMO)

Visit website

RQMO is a group of associations dedicated to rare diseases and individuals affected by them (this site is in French).

Visit website